Updated: Jan 11, 2021
My name is Manjula and I am a full-time working mum of a family of 4 - my husband Prakash, my daughter Verisa, and my son Jaylan, who has Down Syndrome. Just under four years after the birth of our daughter, my husband and I were blessed again with the birth of our son.
Jaylan is now 23 years old and attends an adult day-centre four days a week. I would like to talk to you about our family experiences of living with an individual with Down syndrome. My family and I will be writing our entries together and hope to give a different and honest perspective.
What will we bring to the table?
I will blog about different topics each month, throwing in a few anecdotes here and there. So here are a few that will be coming up:-
· The birth of Jaylan and our first week together
· Understanding Down Syndrome and finding out what it meant for us and Jaylan himself
· Our first year with Jaylan
· Health issues affecting Jaylan
· Finding out what support is available
· Finding schools for him and the challenges we faced
· The challenge of adulthood
· Challenges we face in society
· The future prospects for someone with Down Syndrome
So, what is Down Syndrome?
Down Syndrome is a genetic condition where an individual is born with an extra chromosome. Babies born with Down Syndrome have an extra copy of chromosome 21. Having a duplicate chromosome affects the way one’s body and brain develops, resulting in mental, medical and physical challenges, including the ones listed below:-
Lower than average IQ
Take longer to learn to speak
Short attention span
More susceptible to infections and illnesses like colds and the flu
a flattened face
an enlarged tongue hard to conceal within the mouth
small hands and feet
shorter in height